National Organizations
www.ndss.org - National Down Syndrome Society 1-800-221-4602
www.ndsccenter.org - National Down Syndrome Congress
www.nad.org - National Association for the Deaf 1-301-587-6265
www.autism-society.org - Autism Society of America 1-800-3-autism
www.spedex.com/napvi - National Association for Parents of the Visually Impaired
1-800-562-6265
www.disabilityinfo.gov - A single point for Government information and resources related to disabilities and to the New Freedom Initiative.
www.usdoj.gov/crt/ada/adahom1.htm - Information and Technical Assistance on the Americans with Disabilities Act.
http://www.zerotothree.org - The Nation's leading resource of the first years of life
www.cdc.gov/ncbddd/autism/ActEarly/ - to download free fact sheets and educational materials for healthcare providers, parents, and partners "Learn the Signs. Act Early" to help parents understand early warning signs of autism and other developmental disabilities and material from the CDC.
www.autismone.org/radio - A Worldwide Web-Based Radio Station for the Care, Treatment and Recovery of Children with Autism
www.jtc.org - John Tracy Clinic - Free services worldwide for parents of infants and preschool children with hearing loss
www.nichcy.org
- NICHCY stands for the National Dissemination Center for Children with
Disabilities. We serve the nation as a central source of information on:
* disabilities in infants, toddlers, children, and youth,
* IDEA, which is the law authorizing special education,
* No Child Left Behind (as it relates to children with disabilities), and
* research-based information on effective educational practices.
www.dsrtf.org/ - Down Syndrome Research and Treatment Foundation
www.dsrtf.org/ - Down Syndrome Research and Treatment Foundation Newsletter 2008
Other Disability Related Websites
www.njcosac.org - The New Jersey Center for Outreach and Services for the Autism Community
www.mtlakes.org/ld -Lake Drive School for Deaf and Hard of Hearing Children
www.oraldeafed.olrg/schools/summit/index.html - Summit Speech School
www.specialfamilies.com - Answers to some common questions
www.beachcenter.org -The Beach Center on Disability
www.KidNeeds.com -Global resource for comprehensive info
www.nmchc.org/index.htm - Maternal Child Health Clearing House
www.spannj.org - Statewide Parent Advocacy Network
www.Tomorrows-Hope.org - Center: Language, Play & Social Skills
www.vwcdexpo.com - Virtual World Congress & Exposition
www.toy-tia.org - Free Toy Safety Info or call (877) ToySafety
www.peakparent.org - Parent Training and Information Center
www.lighthouse.org - For parents and educators of children with impaired vision
www.dougflutiejrfoundation.org - Clearinghouse and information center for families with children with autism, or call 866-3AUTISM
www.njddc.org/mondaymorning.htm - a newsletter for New Jersey’s grass-roots disability community.
www.FetaWeb.com - Avoid mistakes that prevent parents from successfully advocating for their children.
www.hudsonmilestones.org - Serving people with developmental disabilities throughout Hudson County.
www.feedingcenter.org/index.shtml - Visit the above site for information regarding the Pediatric Feeding and Swallowing Center at St. Joseph's Children's Hospital.
www.hearingfocus.com/index.html - For people with hearing loss, their friends and families.
www.edtranslations.com - Educational Translating Services, meeting the needs of non-english speaking families
www.njparentscaucus.org - Parents' Empowerment Academy website. You can download schedules and their brochure.
www.docsfortots.org - Docs For Tots is a nonprofit, nonpartisan, multi-faceted, predominantly doctor involved "advocacy" organization, specifically focused on very young children and their families.
www.d-r-d.com/cp.html - Cerebral Palsy Information and Resources
http://soeweb.syr.edu/thechp/internet.html
Woodbine House special needs collection of books for Parents, Professionals and children Spring 2004 Catalog at www.woodbinehouse.com
www.njpbs.org/ New Jersey Positive Behavior Support in Schools
http://www.tacommunities.org/ev_en.php - This is one of several forums available as part of OSEP's Technical Assistance initiative to exchange strategies and ideas that will improve outcomes for children with disabilities
http://pediatrics.about.com/od/specialneedskids - Resources for children with special needs or disabilities, including children with Downs Syndrome, cerebral palsy, and developmental delays
Kaplan Early Learning Company 1-800-334-2014 www.kaplanco.com -- Expanding the ways we teach and learn Kaplan Early Learning Company
www.njcec.org -- New Jersey Council For Exceptional Children
zerotothree.org/schoolreadiness -- Infant / Toddler development information
www.asha.org/public/speech/development -- American Speech-Language Hearing Center
Resources for Including Children with Special Needs in Child Care -- In either WORD or PDF Format
NJ CART -- NJ Coalition for the Advancement of Assistive and Rehab Technology
ABCD -- Alliance for the Betterment of Citizens with Disabilities (Advocacy)
babycenter.com/toddler -- Products, information advise and much more
ableplay.org -- National Lekotek Center has debuted a unique, free, online resource that identifies the best toys and learning products for children with disabilities
nj.gov/health/fhs/ehdi -- Early Hearing Detection and Intervention (EHDI) Program
www.southasianhealth.org/yourhealth/yourhealth.aspx -- South Asian Health Project
www.fpg.unc.edu/~scpp/pdfs/IMH_Booklet-3-8-06.pdf -- Secure Beginnings is a downloadable booklet for professional audiences in all education and service fields. It can be used in any geographical area by simply changing the referral reference on page 8.
www.fpg.unc.edu/~scpp/pdfs/IMH_Bookmarks.pdf -- The Sound Familiar? bookmark is designed to aid parents and other family members to recognize "when to worry" about social and emotional development.
http://nj.gov/health/fhs/eis/index.shtml -- The Early Intervention System (EIS), under the Division of Family Health Services, implements New Jersey's statewide system of services for infants and toddlers, birth to age three, with developmental delays or disabilities, and their families.
WYCOFF YMCA -- Shining Stars and Billie's Buddies for Children with Down Syndrome
www.thefamilycaregiver.org -- The NFCA (National Family Caregivers Association) Web site has helpful information and ways to express yourself and learn from others. NFCA is a grassroots organization dedicated to improving the overall quality of life of caregiving families and minimizing the disparities between family caregivers and non-caregivers.
InclusionSeries.com -- Award winning programs that can inform, model, and inspire inclusion in schools and communities
www.chop.edu/ectp -- Educatonal Consultant Training Program, (ECTP) Training for teachers working with children with Cochlear Implants at the Children's Hospital of Philadelphia
www.theunexpectedjourney.com -- Interactive empowerment workshops that address the unique emotional realities that a child with special needs brings to a family
www.HDANJ.org -- The mission of the HDANJ is to further the progress of New Jersey's Hispanic Community through cooperation among its members and collaboration with other organizations
www.Speechville.com --
Communication impairments are estimated to affect as many as one out every six
people, and language disorders are often early predictors of learning
disabilities. This is a web site to comprehensively address language disorders,
providing information for families so that they may minimize the effects on
their children.
www.advocacyinstitute.org
-- Designed to provide information on a range
of topics involved with special education supports and services. Learn key
issues in the development of effective and
legally sufficient Transition Plans and many other topics, issues and articles
designed to help and improve academic performance for students with
disabilities.
-- Scheduled to launch in September 2007, Disaboom.com will be the first online resource to offer comprehensive medical information and education, classifieds, social networking and commerce together in one area targeted to meet the needs of hundreds of millions of people currently living with a disability or functional limitation as well as family members, friends, caregivers, recreation and rehabilitation providers and employers."
www.researchautism.org/resources/reading/index.asp --
You can download or order "Life Journey
Through Autism"
-Parent's Guide to Research
-Educator's Guide to Research
-Educator's Guide to Asperger Syndrome
-Guide to Transition to Adulthood
Information is provided by OAR
Organization for Autism Research
St.
Joseph's Children's Hospital Early Intervention Program
provides services to families and children with
developmental delays and/or disabilities between the ages of birth to three
years. The developmental services focus on gross motor, fine motor, receptive
and expressive communication, cognitive, adaptive, and/or social emotional
skills based on the individual needs of each child/family. Additionally, St.
Joseph's provide parent education and support. Services are provided in homes,
child care centers, and/or the center. Through structured play activities, as
well as, daily functions, families learn to understand and improve their child's
overall development. Serving a varied population throughout Southern Passaic
County.
GRASP The Global and Regional Asperger Syndrome Partnership (English/Spanish versions available) Grasp is an educational and advocacy organization serving people on the Autism spectrum.
DSRTF Down Syndrome Research and Treatment Foundation-
The
mission of DSRTF is to stimulate biomedical research that will accelerate the
development of treatments to significantly improve cognition for individuals
with Down syndrome.
NICHCY stands for the National Dissemination Center for Children with Disabilities.
Serving the nation as a central source of information on:
disabilities in infants, toddlers, children, and youth,
IDEA, which is the law authorizing special education,
No Child Left Behind (as it relates to children with disabilities), and
research-based information on effective educational practices.
www.pacnj.org With over 70 members on six task forces, PACNJ is working with schools, child care providers, health care providers, health insurers, community groups and environmental agencies to reach all individuals in New Jersey with the most effective methods for managing their asthma.
The Family seems to be the most
effective and economical system for fostering and sustaining the child’s
development.
Without family involvement, intervention is likely to be
unsuccessful, And what few effects are achieved are likely to disappear once the intervention is
discontinued. — Urie Bronfenbrenner
Copyright 2009